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My story

My name is Heiner Bruno.

I was born on October 11, 2016. I am a 7.5-year-old cheerful and happy boy. Currently, I am studying at Pestalozzi School with excellent results.

How Did It All Start?

On January 23, 2024, I experienced a severe muscle cramp in my right leg. The medical examinations began, and on February 29, 2024, the genetic tests confirmed Duchenne Muscular Dystrophy (DMD). I want to avoid being confined to a wheelchair, which can currently be prevented with gene therapy, but it is very costly (Sarepta Elevidys: $4.6 million USD).

What Can Be Known About This Disease?

Duchenne Muscular Dystrophy is a congenital, hereditary disease characterized by the progressive destruction of muscle cells. The muscle cells are replaced by fat and connective tissue, which impairs muscle function, causing the patient to become increasingly weaker. By the age of 10, the patient will be forced into a wheelchair, and within a few years, the condition will extend to the heart and respiratory muscles as well.

Help Bruno

Please share the link to my page so that it reaches as many people as possible, and I have a better chance of maintaining my ability to walk!